کاردرمانی در اپیدرمولیز بولوزا (EB) – مفهوم کل نگر برای مداخله از نوزادی تا بزرگسالی Occupational therapy IN Epidermolysis bullosa
- نوع فایل : کتاب
- زبان : انگلیسی
- نویسندگان : Hedwig WeiB and Florian Prinz
- چاپ و سال / کشور: 2013
- تعداد صفحه : 198
توضیحات
EB یا اپیدرمولیز بولوزا (Epidermolysis Bullosa) یک بیماری وراثتی بافت همبند است، که باعث تاول در پوست و مخاط می گردد. این بیماری ناشی از یک نقص در نگه دارنده بین اپیدرم و درم بوده، که نتیجه آن اصطکاک و شکنندگی پوست می باشد. شدت آن از خفیف تا کشنده است.
Description
Epidermolysis bullosa (EB) is the collective term for a heterogenous group of genetic skin disorders characterised by the formation of blisters and erosions on skin and mucous membranes. This book deals with early childhood motor and perceptual development, a particular challenge for children with extremely fragile skin. Going into functional treatment, it addresses rehabilitation of hands and feet in EB patients with fusions or contractures. The authors are occupational therapists with long-term experience in the management of EB patients. In an extraordinary holistic approach, they present a combination of paediatric and functional areas of treatment. Occupational therapy tools and interventions can help alleviate a number of accompanying complications and symptoms of EB, enhance self-care, and improve quality of life in general. Due to its practical approach, this book not only serves as a unique guide for doctors and health care professionals but is also comprehensible and useful for patients
