Sudden unexpected death in epilepsy (SUDEP): a pilot study on truth telling among Italian epileptologists
- نوع فایل : کتاب
- زبان : انگلیسی
- مؤلف : Elena Vegni • Daniela Leone • Maria Paola Canevini • Paolo Tinuper • Egidio Aldo Moja
- چاپ و سال / کشور: 2010
Description
Sudden unexpected death in epilepsy (SUDEP) is a syndrome where a person with epilepsy dies suddenly and no other cause of death is found. The question of informing patients and their families about SUDEP remains a problematic issue. The aim of this study is to explore whether Italian physicians interested in epilepsy believe that they should discuss SUDEP with patients and/ or their families. A total of 315 questionnaire were distributed, of which 195 (61.9%) were returned. Seventeen respondents (8.76%) discussed SUDEP with all of their patients, 38 (19.59%) with the majority of patients, 120 (61.85%) with very few of their patients and 15 (7.73%) with none of their patients. No statistical differences among groups were found for gender, professional age (B10 years; C11 yearsB20 years; C21 yearsB30 years; C31 years) and medical specialty (neurologists vs. others). Open questions offered insights into the physicians’ problem of managing the negative emotions of patients/family and why the physicians decided to give information.
Neurol Sci (2011) 32:331–335 DOI 10.1007/s10072-010-0365-7 Received: 27 April 2009 / Accepted: 22 June 2010 / Published online: 6 July 2010
